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Tuesday, November 18, 2014

“Love - Acceptance - Matters” at MarbleJam Kids, a Creative Arts Therapy Center for Children with Special Needs & Their Families. Written by Founder/Director Anna Villa-Bager


The parent/child connection is a healing force that is often underestimated. Young children with special needs begin their therapeutic path to healing from infancy with hours of at-home therapy. This creates a literal revolving door of therapists coming and going while the parent is not included in the therapy sessions. The child is then sent to a full day special education program from 3 years of age and provided with a home program after school to continue achieving educational & functional goals.  

Many families require that both parents work to make ends meet. Quality family time and focused energy on parent child bonding becomes less of a priority and management of tasks and scheduling of therapeutic interventions or activities becomes overwhelming.  At the end of the day, parents are left catching up on meal planning, chores, and bills. Or they are completely exhausted and conveniently disconnect to social media or a good book behind closed doors. That is if you can get your kids to sleep!

Someone once told me that your realities are the manifestation of your focused thoughts, a frightening yet powerful concept.  If you think you aren't good enough, well then you aren't. If you live as who you want to be, then you are. Whether you believe in this philosophy or not, for parents of children with special needs, it seems only natural to focus on the deficits rather than the accomplishments. We are inundated with diagnostic testing that tells us our kids have issues and we become hyper-focused on fixing them and making them fit in. We focus on the exterior reality or appearance rather than the inner essence of the child.  We disconnect because we can't handle them not being good enough according to standards set by our society.

How much time is left in the day? How much time are we actually spending engaging our own children?  The LAM (Love, Acceptance, Matters) Program provides the parent and their child an opportunity to rebuild their relationship and re-establish a trust and bond that may have been severed. The program was developed by Adrienne Murphy, a speech pathologist, yoga teacher and energy practitioner, and Lois Mettler, a puppetry master, educator, yoga teacher and energy practitioner who combined their knowledge and years of experience working with children.  They co-created what could be the missing piece in the healing process.  Within these sessions, participants are guided through creative, integrative play to re-connect from the child's perspective and energy work that focuses on the mind and body connection.  This state of being in Savasana (yoga relaxation pose) allows for a more loving and open path to letting go and accepting. This is where the real change begins. The program has been nothing short of magnificent as it merges healing arts with creative arts therapeutic play.

The philosophy of LAM is to meet both the parent and child without judgment at their unique level of engagement in order to move them forward in a more loving and connected manner. This effect leads to greater success and achievement of the necessary developmental milestones each child needs to function in this world.  As a result, parents become less stressed and enjoy their child’s successes without feeling like their child is a “failure” and needs “fixing”.
Parents, who have participated, enthusiastically shared with us their child’s achievements of various developmental milestones.  Additionally, Adrienne and Lois have documented their sessions compiling data that demonstrates success among the children they work with in each of the following areas: increased speech-language skills (receptive/expressive), increased emotional connection to family members, reduction in meltdown and self-stimulation behaviors, improved social interaction, improved eye contact, independence in toilet training, consistent sleep patterns, improved functional activities of daily living such as feeding and dressing, improved play skills, and increased ability to follow directions and take turns.
We are truly grateful at the tremendous success this program has had in such a short amount of time.   The LAM program is structured to include intakes/assessments in private parent/guardian with child sessions for ages 0-­‐12. In addition to this program, Adrienne & Lois have been providing parents the opportunity to refresh and renew with “Mindfulness Training Workshops” a series of workshops that teaches parents “mindfulness tools” to be fully present with their child in a more authentic and loving way during all moments of everyday life. They provide guidance that facilitates a more compassionate and peaceful perspective for managing challenging situations within the family dynamic. These tools allow parents to understand the many choices they have when reacting to their child's behaviors, and the understanding of how negativity can impact a child's overall physical heath and emotional well-being. The sessions also provide parents the opportunity to share their concerns in a safe environment under complete confidentiality. After attending the first workshop series, I found myself taking a more thoughtful approach within my own family environment.  Their professional and mentoring approach to creating a peaceful home starts from within and I look forward to participating in the next series.

LAM believes a positive and joyful connection between the parent and child is crucial. This joyful connection facilitates success in all levels of development by serving as the key to unlock each child’s special gifts and talents. This fall LAM introduced another new and exciting program for teens with special needs entitled, “Loving Amazing Me” for youth ages 12 - 18. The parent is paired with his/her own teen in the program.  This is an overall wellness program that seeks to empower this age group by increasing self-esteem through connecting with their parent in a cooperative experiential session.  Teens and their parents are guided through yoga movement, breathing exercises, meditations, mantras, energy work, sound therapy and cooperative games, rebuilding their relationship with one another and providing support for self-empowerment and independence. 
Parents and children love coming to MarbleJam Kids for their LAM sessions and leave with a smile. Some of the testimonials from parents of the LAM programs are the following:
“ Thank you so much!! We can’t believe the change in him!! The change is remarkable. For the first time in a long time... I am able to hug and kiss my beloved grandchild. There are no words or price that can ever express such deep gratitude to you both...there is a special place for you and Lois in heaven...” (Nancy P-­‐ grandson age 7 diagnosed with ADHD) (Bergen County)
“Use of language increased for requesting without prompts and dramatic improvement in independence with use of bathroom. Great program.” (Bernadette D-­‐ son aged 10 diagnosed with Down’s Syndrome) (Rockland County)
“Grandma C. noticed better eye contact and smiles. He played better with her. Ate an apple while he sat on mom’s lap. He did not move until he was finished. When asked if he could have a bite, he said ‘no’. Showed signs of missing his dad when he was away for business. Imitated “Do this” while “Face Time” with Grandma. Imitated the phrase ‘I love you’” (Genine A-­‐ son age 4 diagnosed with ASD and receptive and expressive and language disorder) (Bergen County).
Our goal at MarbleJam Kids is to move beyond traditional therapies by introducing progressive programs that are evidential and life affirming. We look forward to another exciting and impressive year with LAM as a part of the MarbleJam family!
MarbleJam Kids is a 501c3 non profit organization and center for creative arts therapies and enrichment programs founded by parents of children with special needs in 2007.  The center is an authorized service provider by the NJ Department of Children & Families and NJ DDD, serving children, youth, and adults with autism spectrum disorders, developmental disabilities, and other learning and emotional challenges.  The center also provides individual, youth and family support. More information can be found at www.marblejamkids.org
MarbleJam Kids relies on contributions to supplement costs of programming.  Giving to MarbleJam Kids directly supports programming.  Please consider a contribution so that we may continue to provide and expand these programs to other communities in need of services. Go to Support MarbleJam Kids where you can learn more and give.  

Tuesday, June 3, 2014

Friday, September 27, 2013

MARBLEJAM KIDS OPEN HOUSE!

MJK LOGO

Sharing Smiles


MarbleJam Kids OPEN HOUSE WEEKEND!!!
JOIN US AT OUR NEW HOME!
OCTOBER 19TH & 20TH
11:00AM - 4:00PM

MarbleJam Enrichment Center
954 Kinderkamack Road, River Edge, NJ 07661
 children-playing-marbles.jpg
WE FINALLY ROLLED THE MARBLES TO RIVER EDGE!

Please join us for an afternoon of '
TRY IT' sessions as we open up registration for programs and services at our River Edge center!

We are offering experiences in art, drama, music, dance, fitness, & yoga for children, teens, and adults with special needs.
  
CALL US AT 201-497-6512 or email us at info@marblejamkids.org and let us know what your child or adult is interested in participating in!

Please include phone #, first name, and age of child in the email. Parent must stay in the facility.
  
Try It Sessions and classes run per half hour from 
1:00pm - 4:00pm 

Stay tuned for the schedule.  Additional
program information can be found at www.marblejamkids.org
       

REGISTRATION OFFICIALLY OPENS MONDAY OCTOBER 7TH

CONTACT US at 201-497-6512 or EMAIL US info@marblejamkids.org 

PLEASE EXCUSE OUR APPEARANCE AS WE PREPARE FOR THE CHILDREN


Orange
Join Our Mailing List

We feel truly blessed to have had the support of so many during this transitional period. Our hearts are moved by the kindness and generosity of our community of friends, businesses, foundations, colleagues, volunteers, families, school districts, and the special children who share the love for the arts.  A very special thanks to our own families who continue to support our effort to provide opportunities that build relationships among peers utilizing the arts. 

ABOUT US:
MarbleJam Kids is a 501c3 non-profit organization and NJ Department of Developmental Disabilities authorized service provider. We offer creative arts therapy and supported arts programs for children with autism spectrum disorders, related disabilities, at risk youth, and special needs populations. Program fees are supplemented to ensure consistency and affordability. Insurance may apply for therapy under behavioral health. Please contact your child's case manager to inquire about cooperation between school district and programming. To learn more about the benefits of creative arts therapy, and therapeutically supported enrichment programs, please visit www.marblejamkids.org 

Friday, September 20, 2013

BELIEVE IN WHAT IS POSSIBLE

MarbleJam Kids
An artist lives in all of us. For some it just needs to be discovered...

Group Art Project - The Dancer
We are a passionate group of creative arts therapists, special educators, specialized instructors, specialized aides, and parents who truly care about children with autism spectrum disorders, developmental disabilities, learning differences, and special needs. There is creative potential in ALL children and no child should be denied the opportunity to explore their creative side. In fact, they need it. Early child development requires a growing child to explore through creative play and interaction with others, as the path to learning, communication, and self discovery.

As a parent of a child on the autism spectrum, I never underestimated my daughters' need for creative and emotional fulfillment even when she didn't show interest in these areas. I am not saying it wasn't difficult or disappointing that my child didn't want to play with me, or toys, or engage with family members. It was heartbreaking at times. I found myself wondering if I was doing something wrong. Am I just not fun enough? Maybe she thinks I'm boring?

At the age of 2 we noticed she still wasn't talking so it was recommended that my husband and I have her evaluated by a child development specialist and pediatric physician.  We were told by the neuro-pediatric physician, 'Your child has pervasive developmental delay.'  She told my husband and I to read about it and gave us a website address that explained autism spectrum disorders and a phone number to get her started with therapy.  My first thought was relief, "Autism? Oh my God, so, then it wasn't me! My child has autism, and it all makes sense. I can blame autism!"

After reality settled in, it became clear that our lives would be taking a different course. My desire to go back into the theater after time off mothering an infant was going to be seriously delayed.  I didn't know anything about autism or how to manage a child with this condition.  I only thought of it as a very rare genetic disorder that is disabling with little hope for a 'normal' life. I began to panic.  The internal questioning of her future started to exhaust me. Will my life now be about caring for my disabled daughter? Will she ever be able to fit into society? Will she ever speak, point, express needs and desires? Will she have relationships? I started freaking out!

I was now embarking on a long journey, a leap into the scary unknown. I waited until I was 40 to have my 1st child and she would likely be my only child. She was a perfect infant. What happened?  I was determined to make her 'normal'.  Normal!  Why can't she be normal?!!  It didn't take long to figure out that there is no normal!  I realized this after meeting typical kids with similar issues but not to the extent of my child's challenges. I also noticed other young children moving through milestones while mine remained behind. Others noticed too. That was hard.

We were fortunate to have been provided with 30 hours a week of early intervention therapy for 8 months. The guest room in our home became a therapy room  that held a small table, 2 chairs, and little of anything else.  Our house became a revolving door of professional therapists that provided 1 to 1 therapy to help our child learn, engage, and thrive. Speech, physical therapy, occupational therapy, ABA (applied behavioral analysis) Therapy.  I remember feeling like a hostage in my own home, isolated from my friends.

I longed to have my little girl play with me so I started reading and learning more about autism, different therapeutic approaches, and how to engage my child.  I was discouraged.  After reading a few books about developmental disabilities and spectrum disorders, I learned that innate learning or incidental learning does not really happen for children with autism.  They need the direction, a nudge, focused attention, to help them understand or spark their own interests as well as the interests of others, and it takes time and a support system to help them participate in activities that may seem to most as being  'simple play'.  I remember trying different ways of  playing until something worked and then just repeating what worked. This was encouraging so I became driven to learn how to get her attention and keep it.  I observed and consulted with the entourage of therapists that were coming to my home and utilized some of their approaches with her as well. Repetition, structure, simplifying commands, rewards, positive reinforcement, modeling the appropriate behavior, hugs, tickles, and gold fish!  I learned the 'happy' voice, adding inflection and varying the pitch in my voice as a tool to give a positive response to her.  I started to use it all the time, even when it was for something as simple as a look in my direction. It started working and this little personality started emerging. It took months to build a bond that gave her real reasons to want my attention but I was okay with it.  She was mine and I love her!

As an accomplished professional dancer, my love for all of the arts are at the heart of who I am so I started incorporating music, art, and dance in her world whether she liked it or not. She did't like it at first. She couldn't focus or even hold a crayon. She had no interest in ride on toys other than flipping them over to spin the wheels. She would obsess over light switches, jump up and down continually, not respond to my calling her, run away, stair at trees, pull at her ears, eye brows, hair, or obsess over a plastic duck that she had to hold in her left hand.  I picked up Baby Einstein DVDs and introduced finger painting and clay and eventually she took a paintbrush.  I noticed that she liked to turn pages in books, so I found some with audio CD's.  She really enjoyed listening and seemed to follow along but is wasn't sure.  I started taking her to the library and book store where she would pick her own books and noticed that she was particular!  At age 3, we placed her in a full day special education program where they utilizing an educational approach call applied behavioral analysis. It was also working for her as well. By age 4, she started speaking in sentences but I still couldn't really have a conversation with her.  She would memorize audio books and recite them, pages and pages.  I quickly realized that she had receptive language and could decode text in her head.  She just didn't have the speaking mechanism in working order!  Within 3 years, she surpassed expectations and was ready to move on to kindergarten with typical peers right on time. It took a team to make it happen.

Now she is 12 years old. She speaks clearly, sings beautifully, loves to read, write stories, draw, and she plays the flute, which she is not permitted to quit.  Learning to read music and play an instrument is as important as math, science, literature, and social studies so consider the flute another subject!  We have a tremendous support system of qualified professionals, educators, a loving family, and community that continues to keep her moving forward. But the influence of the creative arts expressed in everything she writes, draws, and sings, keeps her engaged, happy, and learning more effectively. She has confidence. She understands she is unique and she okay with it even when others aren't! She teaches me how to be a better person every day and I can't imagine my life with out her.

When special needs children do discover their niche, they do so with gusto and a purposeful passion offering unique creative perspectives and moments that can move you to tears. When they are given the time and support needed for them express feelings, explore, and create under less structured environments, they become happier human beings. Introducing the arts as a tool for self discovery, expression, and emotional wellness often times provides the added bonus of behavior modification. Children with autism often harm themselves and can harm others but for many, this can change when providing a customized program to meed individual needs. We see this every day at MarbleJam Kids!  Creative Arts Therapy is a beautiful way to reach into the heart of a child at any age.

It has been a challenge and joy to introduce the arts as a means of meeting the extraordinary needs of young children and teens on the autism spectrum.  Today, I felt compelled to share a little of my story to support other moms out there and to recommend they incorporate the arts in the daily lives of their special needs children. Not sure why the need to share overwhelmed my day but perhaps it's because we are moving our center and I'm feeling like it's a turning point for me personally and the organization. It's been six years that MarbleJam Kids has been providing creative arts therapy and supported arts programs to children with autism spectrum disorders, related disabilities, and special needs.  It started with an idea to present the arts to children with autism so they too can attend after school programming but present in a way they can succeed. We are indeed building relationships, creating childhood memories and lasting friendships through shared arts experiences. I only know this because of the supportive testimonials by the moms, dads, and children who have attended our programs.

My wish is to create more meaningful opportunities that will support them as they move into adulthood, so they don't fall of the radar, so they have creative options, and remain active participants in their community. The arts can be the way and there is no reason to believe it's impossible.  We simply need to try harder and believe that the potential is worth the extra effort.  It feels like the right thing to do and I just can't see us not doing it.

by Anna Villa-Bager
Founder, MarbleJam Kids
Support the Arts for All and learn more at www.marblejamkids.org